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Intro Toot!

Hi, I am Zen. A bisexual polyamorous Jedi Knight.

I like to write, code, and build electronic gadgets. Avid roleplayer either tabletop or in the virtual world of Second Life.

Both mentally ill (Bipolar I) and chronically ill (Dermatomyositis with Interstitial Lung Disease) and while people may think I should not let my illnesses define me, they impact every moment of my life and are not easily dismissed. This is my lived reality.

Constantly evolving.

Medical talk 

I had my first transplant education class today. It can be a bit overwhelming. This is definitely the most difficult thing I have ever undertaken. So really a time for me to live up to my ideals of that the difficult work is most worthy.

Health (+) 

So Tuesday was my 49th Birthday. It is also the day I got a life-changing and possibly life-extending phone call. It was Kristina the Stanford Lung Transplant Coordinator.

So long story short, the first real step towards a lung transplant is scheduled. I will have to spend several days at Stanford for tests, procedures, and education.

So now my journey towards a possible transplant begins in earnest. I am in disbelief and scared.

So I am melancholy over getting vaccinated. My health professionals are of the opinion some protection is better than none. If my immune system was not already literally trying to kill me my community of anti-mask anti-vaxx Trump cultists are also trying to kill me all in the name of "freedom" while not looking out for the most vulnerable that live among them, but they don't care. Nobody cares about us chronically ill people stuck in our homes for over a year now vaccine or not.

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But for me normal will be the same precautions everyone should be employing now and more isolation at home while a sizable amount of the population refuses the vaccine or other safety measures making it unsafe for my immunocompromised ass to be around people. Herd immunity is a ways off but without it, I will always be severely at risk. Not just for COVID but anything transmissible can put me in a bad way.

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Yesterday I received my first dose of the Pfizer COVID-19 vaccine. But I am not celebrating to do all the things when I get my second dose in 3 weeks. You see the immunosuppressant drugs that keep me alive also affect the efficacy of the vaccine. So even vaccinated the pandemic does not end for me. I wore masks in public before the pandemic and I will have to afterward as well, avoid crowds, carry hand sanitizer, and all the rest. So I am happy many of you feel you are getting back to normal.

Ate a KitKat the "wrong" way for the first time just now. It was strangely liberating. 4 out of 5 stars, would recommend.

Spoonie bitching 

chronic illness is exhausting.

Waking up in pain is a shitastic start to any day.

If your space welcomes "women & non-binary people" but excludes masc or AMAB non-binary people, you are not welcoming to non-binary people.

Medical and parent complaining 

So I have an in person appointment at Stanford this week. My mom has often offered to transport me to appointments there but wanted me to overnight at her home in Stockton the day of my appointment which is unrealistic especially with my oxygen equipment. So I tell her I will find another way and she gets upset at me. *sigh*

I am hella nervous going that far during the pandemic while immunocompromised.

I also have the introduction written. So off to a good start.

Here are some of the chapter ideas we have brainstormed:

Why the Path is Political
The Good Guys in Star Wars were antifascist
The Rebellion is Diverse
The Resistance is led by women
"Training as an Ally"
"No side is still a side: choosing sides matters" -> "Empire or Rebellion?"
The Good Stormtroopers were the ones that quit

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So I started work on my follow up book to my first Jedi Book. The follow up will be titled "The Social Justice Jedi" I have not decided firmly on a subtitle but I am leaning towards "Becoming a Guardian of Peace and Justice" I have been brainstorming chapter ideas with my Jedi Mentee, Anna Lightsky.

Hopefully I can finish this one a lot quicker than the last one. I have the foreword written where I talk about the environment of the book's creation after the murder of George Floyd.

Jedi Fallen Order 

I am REALLY getting tired of Dathomir.

But at least the game doesn't crash anymore so there is hope I could be done with it. But now I learn we have to come back here later.

So this song just came across my radar. Dedicated to all my sapphic friends. I have so much love for this. The heartbreak is real.

So over at Jedi Path Academy. we pulled off our second video conference class this one being "The Jedi Response to Oppression" it turned into a pretty long discussion, but I hope worthwhile. Here is the recording of the session:

So I am one of those "Real-Life Jedi" and I have been doing it for about 15 years. I started a Jedi website in 2012, and I recently launched a program where I teach Jedi Philosophy in real-time over videoconference. Tonight was our first class, and I think it went splendidly. Here is the recording so you can see for yourself

ZenMondo boosted

Today's mascot was requested by our very own real life Jedi @ZenMondo and created by @Feverdreamless ! It shows our mascot, Fuchsia, cosplaying Rey from the new Star Wars series!

May the Fourth be with you!

Medical procedure. 

Two more days, then again 4 weeks later. for a six months treatment plan, then we will revisit with my doctors.

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Medical procedure. 

My first day of IVIG infusion is done, and I feel fine -- well actually not worse than I usually do.

During the infusion, I did a brief meditation trying to "connect" to my medicine or at least to those who donated plasma to make the medicine. I have the antibodies of tens of thousands of individuals in my system now. As many as 60,000 different donors went into this.

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Beach City

Beach City is our private beach-side sanctuary for close friends and awesome folks. We are various flavors of trans, queer, non-binary, polyamorous, disabled, furry, etc.